MicroblogMondays: Losing Weight

Ever since my son Okra stopped his appetite stimulant, we have seen a reduction in the frequency of his extreme tantrums.  He used to have them frequently and they lasted 1.5 hours to 2 hours.  After he stopped his meds, he had two of these tantrums in January and none in February.  He does still throw tantrums and is whiny but he does not throw a tantrum out of the blue and they don’t last 2 hours.  In terms of eating, he seems to be pickier than before.  He seems to be uninterested in a variety of food that he used to eat, and some days getting him to come to the table for lunch and dinner has become a chore.  He would refuse to come or would hide.  When he does come, he would eat a piece or two and declare that he is done.  I became worried about his weight so I weighed him last week.  He has lost about half a pound.  After I weighed him, I was very sad and was trying to hold my tears.  Despite my best effort, I shed a few tears while brushing Okra’s teeth.  He looked at me and asked, “Mommy, why are you sad?” Bob heard my sniffles and came to ask what happened.  I was so thankful that instead of asking me not to cry, he took me and Okra to our bed.  He and Okra snuggled with me and rubbed my back while I cried my heart out.  I needed that loving tenderness in that moment.  Ever since that day, I have again become intentional in what I give Okra for each meal.  I add butter, coconut oil, or avocado oil in bread, rice, muffin, or pancakes.  I am trying smoothies with him again.  He hasn’t liked it in the past but it doesn’t hurt to expose him again and again.  I am even giving him and his sister ice cream a couple of times a week.  I am keeping a food journal to see exactly what he is consuming each day.  I messaged his GI specialist who suggested putting Okra back on the appetite stimulant to let him gain some weight again.  I am very hesitant in doing so because of the extreme tantrums.  I am part of a FB group of caregivers who struggle to help their kids gain weight.  Many people are/were in the same situation where the medication causes their children’s moodiness.  Some suggested reducing the dosage or to only take the dose at bed time.  Okra has a follow up appointment with the GI specialist in a couple of weeks. I will be armed with loads of questions and hopefully make an informed decision.  In the mean time, I am happy to report that Okra has been eating pretty well for a few days in a row.  He hasn’t refused to come to a meal, and he actually has been eating most of the food offered to him on his plate/bowl.  It has been hard to do, but I am trying to focus on it one day at a time and choose to celebrate small victories whenever I can.

One thought on “MicroblogMondays: Losing Weight

  1. I’m glad Okra is not having the tantrums in the same way, but sorry he has lost weight. My CF niece needs fat added to all her meals as you are doing with Okra to try to maintain her very skinny weight. It’s a constant battle for my sister, and I feel for you. The tantrums must be awful for him to experience too (along with your distress), so I do hope your specialist can come up with an alternative option for you.

    Liked by 1 person

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