More Roadblocks – Unsuccessful Hysteroscopy

There has been so many roadblocks in our quest to pursue egg donation.  It has almost become comical.

Yesterday was actually a sunny day.  Since I had to fast four hours prior to surgery time, Bob took me out to breakfast early so I could be full before the time limit.  Usually there are plenty of metered parking spots in front of the clinic’s building.  However, on a baseball game day (since the new clinic is very close to AT&T Park), these metered parking spaces are easily all taken.  We fortunately pulled into the last available spot before a bunch of drivers drove by asking if we were leaving.  Once we arrived at the clinic, we paid up and I was taken to the back for a physical exam.  The nurse took my blood pressure, which was slightly high.  And she also checked my weight in a convoluted way: after seating me on the exam table, the nurse raised the table and pointed a hand-held device at me.  The weight was registered on the device.  That was a weird experience.  Why they couldn’t just have the old-fashioned scale is beyond me.  Anyhow, a doctor came in and explained the procedure to me.  Since I was still bleeding even after being on the birth control pill for two weeks, I was worried that the blood would obstruct the view of the uterus.  The doctor thought that a little bit of bleeding would be okay.  As she explained it, I knew that it was going to be a simple procedure with minimal invasion.  Basically, Dr. No Nonsense was going to put a scope in my uterus, check on the scar tissue, and use scissors to remove it.  Okay.  I got that.

After the physical exam, Bob and I were taken to the other wing of the clinic.  This new clinic is like a maze.  The procedure side of the clinic had this open view of the bay with a few barges parked there in the water.  That was Bob’s work place for the next 1.5 hours.  I was led to a recovery room to get ready.  This is actually where the clinic currently does all the retrievals and transfers.  It looks really nice, clean, and modern.  All the recovery rooms are separated and all with a view of the bay.  I changed into my gown.  Both nurses were super nice.  They administered two pills of Ativan and one Norco to me.  The petite nurse told me that she only works here one day a week.  While she was doing that, she commented on my nice juicy veins.  Well, I think because she was not used to the IV catheter provided by this clinic, she kept on maneuvering the catheter needle and could not get it to go through my vein.  I usually tolerate pain really well.  Her maneuver was making it very uncomfortable for me.  She apologized, took out the needle from my wrist area, and tried my arm.  Same thing.  No luck.  She mumbled something like it rarely happens to her.  I reassured her that it was okay.  The tall nurse, a regular nurse at this clinic, came to the rescue.  She tried my right wrist and got it in on the first try.  Thank goodness.  I think the Ativan and the Norco were really calming me down because I was just sitting there smiling.  The tall nurse suggested to bring Bob back to say good bye before I went in.  He came in smiling, saying that he bumped into Dr. NN in the waiting room and showed him the electronic medical device that he was working on for work.  Dr. NN was super interested in it because his wife is a physician with a discipline related to the body part for which the device is intended.  Bob and I chatted for a little and kissed before I was wheeled into the operating room.

In the OR, I was positioned on the table before Dr. NN showed up later.  As usual, I asked for extra blankets.  The nurses were so nice.  They kept telling me that the most important thing was my comfort level.  They would give me the minimum amount of Fentanyl to keep me comfortable.  I could ask for it any time my pain level would go higher than five.  They really took very good care of me.  When Dr. NN came in, the first thing he said was how enamored he was of Bob’s new toy out there.  So I said, Yes, Bob said that since Dr. NN was going to cut up his wife, it was only fair for Dr. NN’s wife to purchase a device from Bob.  Too funny.  🙂  For the next 20 minutes, Dr. NN was trying to get the computer to log off from someone else’s account so he could log onto his own account.  I lay there with my legs wide open waiting for him to do so.  Sometimes technology is very frustrating.

Finally, Dr. NN was ready to get started.  He exclaimed and said, You are not just spotting, you are really bleeding.  When he started to put in the speculum, I felt the pulling and the tugging.  The nurse was right next to me explaining what Dr. NN was doing.  She was gentle and reassuring.  I was lying there watching the screen while he was doing his thing.  I was watching and watching, and my heart sank a little.  I had seen a hysteroscopy done before at my OB/GYN’s office.  I knew what it should look like. Although no one was telling me what was going on, I could tell that things weren’t going well.  I saw on the screen what looked like the inside of me.  But I didn’t know what part of my body it was.  Was it still in the cervical area?  Was it already in my uterus?  It was hard to tell.  I could see narrow passages and some blood attached to the wall of some sort.  I could see what looked like torn cotton balls blown by wind.  After struggling for a while, Dr. NN mumbled something under his breath and took the scope out.  He told me that my cervix’s opening was too wide, so the water that was pumped inside me that was intended to be used to expand the uterus kept on leaking out from the cervix.  He had a plastic bag underneath the table that was filled with the water that was supposed to remain inside me.  Because the uterus could not be expanded, he could not get a good look at the cavity in order to find the scar tissue.  He said he wished that he could do this in the real operating room when I am put under, so that he could use a bigger scope and maneuver things around inside me without making it painful for me.

With me lying on the table with my legs wide open, I listened to him and was thinking, This can’t be happening.   I told him that I cannot get the other surgery done with general anesthesia at UCSF because of the cost ($18,000 out of pocket, which I can’t afford).  I paid for this current procedure out of pocket hoping that the scar tissue would be cleared.  In order to get the other surgery done, I would have to go back to Kaiser, using my own insurance.  Kaiser insurance does not cover for a procedure done at UCSF.  Dr. NN told me that he wanted to write an email and refer me to another reproductive endocrinologist at Kaiser.  I mentioned that I actually did have an appointment scheduled with the surgical team doctor at Kaiser for June 9th.  I intended to cancel the appointment but was too lazy to do so.  So I currently still have the appointment scheduled for next Tuesday.  He said that whoever is going to do my surgery at Kaiser could contact him via email so they could touch base and talk about what to do next.  Dr. NN looked at my face, and said, you are disappointed.  I said, of course I am.  I just want to get it done and be done with it.  So he said, Okay, let’s try to do this one more time.

Dr. NN pushed the scope through one more time.  Same scene on the screen.  Some blood spots, fleshy looking walls, and some torn cotton ball like material being blown by the wind.  And liquid that kept on leaking back out of my body.  He couldn’t expand the uterus.  He pulled everything out, and showed me the big plastic pouch full of bloody water that came out of my body.  I lay there, looking at him.  I was speechless.  What can I say?  We tried.  So I asked a few things.  I asked about the fees that we had already paid for.  Dr. NN said he would see what he could do about it.  Also, I was wondering what code would be used for the procedure at Kaiser.  If a fertility code rather than a medical code is used, then the procedure will not be covered.  He really didn’t know the answer to that.  It is left for me to figure it out with Kaiser.  Dr. NN finished up with me, then exited the OR to go talk to my husband.  Before he left, he said, “I know the procedure in the future will be simple so we will get you ready to have your babies.”  The nurses remained inside the OR with me and explained the whole thing all over again to me about what happened just now.  I really appreciate their kindness and thoroughness with me.  When I was ready, I got up and was wheeled back to the recovery room.

Bob came in with a big smile on his face.  I really appreciate him being calm.  Dr. NN had explained to him what happened.  Bob looked at me and asked if I was worried about the money.  He told me that it was just money, so don’t worry about it.  The good thing is, we can get it done, and we will.  It is just a minor setback.  Because of his calmness, I was calm as well.  I sat there sipping my ginger ale and eating my crackers.  After the nurses made sure that I was fine, they removed the IV catheter from my wrist so I could change and go home.

It was still sunny when we walked out of the clinic.  Sitting in the car, I started feeling a little nauseous.  It could have been from the meds that were given to me.  When we arrived home, I had to lie down because the discomfort in my stomach was becoming a bit too much to tolerate.  I fell asleep.  My mom, who came home later, applied herbal ointment on my chest to make me feel better.  She and my dad also bought us dinner so we didn’t have to worry about food.  It is very nice to be taken care of while my physical being was recovering from the experience during the day.

How about my emotional wellbeing?  Like I said, it has been one roadblock after another.  I never anticipated a problem with the saline sonogram.  And I never expected a failed hysteroscopy because it is really actually a very simple procedure.  I shouldn’t be surprised that things are not going the way we want because… really, things haven’t gone the way we want for quite a few years now.  There is always a surprise when we turn a corner.  What is important is our attitude towards these roadblocks.  Frankly, it still bugs me a little at this moment that the simple procedure could not be done successfully.  But I can’t help but think that there is a reason why this road is so bumpy.  We are doing everything we can.  But we are not in control.  I think we have really learned that nothing is in our control, or our doctors’ control.  I prayed and cried out to God to just take me down the path He wants and help me to have the strength and peace to go through with it.  And I feel fortunate that my laziness paid off as I still have an appointment with Kaiser really soon.

Some days are harder than others.  When times are tough, I am learning to be extra nice to myself.  Today I still took a day off as planned although the procedure was canceled.  I felt that some down time is good for my wellbeing.  I got up early and spent some cuddle time with Bob.  I went for a walk with my father.  Breathing in the fresh air in the park, bathing myself in the sunshine, and chatting about whatever with my own father, those two hours were well spent and good for my soul.  I need to learn to embrace the good moments, and this morning’s moments with my father were the perfect example of something simple and extraordinary.

Friends, I am trying.  I feel that I am going to stay in the pit for a little longer.  But it’s okay.  I am figuring out a way, with God’s help, to climb out of it.  Hopefully I will find the way out very soon.

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15 thoughts on “More Roadblocks – Unsuccessful Hysteroscopy

  1. Oh how I understand all of this Isabelle….I get the roadblocks and it sucks…all the disappointing news too..I understand..it is so hard but I know you will get through this…you have such a great outlook and your uterus just needs a little cleanup that will then make it a perfect home for your babies…I’ll be thinking of you…lots of love…xoxo

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  2. oh hun! I am so sorry! I just can’t imagine. You have been on my heart for several days now. In fact, I am sitting here looking at my “to do” list with your name on it. I keep feeling the need to send you a card…a gift…a book…something to encourage you and remind you that God loves you and you are not forgotten or overlooked. Hang in there! And be looking for something from the postman soon. xoxo

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  3. I am so sorry that you are facing yet another roadblock. It frustrates me beyond belief that someone of us just constantly seem to walking into walls (or maybe I should say slamming into walls). Please know that I am thinking of you.

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  4. Oh gosh I’m so sorry that the doctor wasn’t able to do the procedure. I’m glad that Bob had such a good attitude. Hopefully this is your last roadblock!

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  5. Oh, Isabelle, the obstacles that keep appearing in your path and your perseverance in the face of them are heartbreaking. I wish I had a way to make this easier and gentler on you. Where is my magic wand when I need it?!?

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  6. Ok first, I am so impressed you were so calm with the nurse trying and trying again to get your vein. You are so kind. That is a way to make me mad real quick b/c it kills when they keep poking and poking!
    I am so so sorry things didn’t go as hoped. Bob is so sweet though and how great to have your dad still there! I’m so glad you took a day for yourself! Sending you a huge hug! xoxo

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  7. I “liked” this post…..not because I actually like it or am happy but as a way of acknowledging. I am so sorry this has happened. I don’t know what else to say other than damn the damn roadblocks….there seem to be so many of them for so my of us. Hopefully, you have some luck with the coding and billing and some at Kaiser has a heart. Donor cycles are hard enough without all this crap on top of it.

    But……you have Bob. You have your family. You have learned you need to be kind to yourself when life isn’t. Small things, but things none the less. I pray something sorts out soon, and you have that binky moongee in your arms soon. Xoxoxo

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  8. I’m so sorry. I was on the other end of the same scenario, only my uterus was folded over so tightly that they couldn’t get the fluid to flow in. It’s a difficult thing to be going through and I am hoping upon all hope that Kaiser can do the procedure under a medical code so it is covered. You have an amazing guy with you! Ill be praying for you

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  9. Aw man, your obstacles seem to keep on coming. I think there’s a special soul that is meant to be with you and the timing is going to be just right eventually. That’s how I have to think about making meaning from my own obstacles. Your time is coming. Getting closer every day. HUGS

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